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Member
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Join Date: Jan 2008
Location: Milwaukee WI
Posts: 245
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Member
Join Date: Jan 2008
Location: Milwaukee WI
Posts: 245
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Quote:
Originally Posted by laurasari
So glad u finally found a dr that would listen.
I have dysautonomia also known as autonomic nervous system dysfunction as well as MS. I have been a guinea pig in Vanderbuilt University lab.
Good luck there are many reatment possibilities so if first drugs dont help keep trying
Bestof luck
laurie f
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Thanks Laurie for responding. So YOU have Sjogrens. I know what you mean.. I cannot sleep as my eyelids get soo sore.. even after I just take the Restasis before bed. I think its gravity and laying on my back.
I usually dont get too bad during the daytime..but I have DRY MOUTH and take a pill for producing saliva..do you?
ANd.. I have such dry ears..that one in particular gets infected so bad.. the canal swells shut and they have to put a stint in it to get the ear drop antibiotics inside my ear.
Just having a doctor that will try to find some one answer means more than I realized. The worst for me are these dizzy..spacey headaches that affect my VISION and SPEECH. I can fake a lot..but not seeing.
Keep in touch my dear Laurie ok?
Warmly, Jan
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Yes I believe in miracles~!!
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