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Originally Posted by 4boysmom
I thought I'd help get us to 1000 so we can get a new thread!
I had #10 yesterday, and it was my best infusion by far! I've been getting a horrible case of the chills five minutes after the infusion is completed, and it lasts about 1/2 hour.
Premedicating with benadryl didn't make a difference. I've learned that an aleve an hour before helps with any headaches. But after yesterday, I think the chills, and the fact my body tenses during that time were causing the headaches.
It just went really well. I hope they all can be that way!
There were a few different things. One, it had been five weeks since my last infusion because of a toenail fungus that looked like it may have infection, so I had that nail removed and they postponed ty for a week, and two I was still on Keflex from the toenail removal.
I also took some hot chocolate that I sipped during the infusion.
I think next infusion I'll keep the hot chocolate part, still premedicate with the Aleve an hour before, and hopefully I won't be on any antibiotic!
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Glad to hear that things went well! It sounds like you have been having a hard time and the whole toenail thing?...OW! OW! OW! I have torn off toenails so many times that I cringe and my toes suck back into my feet every time I hear someone has one removed voluntarily!
Quote:
Originally Posted by sheena
I finally had infusion #10 yesterday. All went fine and I really needed it. My prior infusion was due on 12-3, but I had a neuro problem and had to find a new one. Now I have to drive 2 hrs for the infusion and I hate that. I seems I am back active again. I guess due to late infusion. I'm just praying this one pulls me out. B4 I missed the Dec one i seemed stable. So fingers crossed here. Just wanted to update.
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Sheena, I hope that it IS just because your infusion schedule got messed up. The whole traveling thing has to be hard on you. I hope things get back to normal for you soon.
Remember that you CAN still have relapses while on Tysabri. It's ok to have a course of steroids too, the usual 3 day IVSM.
Please let us know how it goes for you.
Both of you have had # 10 now!
How does it feel? Are you settling in to having an infusion rather than shots? Do you feel things have improved? Are you happy with Tysabri as a whole when compared to what you did before for DMT?