Hi everyone.. my name is gillyann.. i live in the uk,57 years old and im bedridden due to postural orthostatic tachycardia syndrome..it came to light last year that i have very low blood volume..i have low red blood cells and plasma.. this is the main reason i am bedridden.. i am on fludrocortisone 0.2mg for the plasma and have only just started on epo injections 10,000 units once a week for the red blood cells.. i suffer from a tight chest, breathlessness, bad blood pooling in my stomach and legs.. i have no quality of life at all..my daughter has had to do this post for me..is there anyone else like me or in my position..i would love to hear