Hello and Welcome to the forum Wordgirl - you will meet lots of great people here who I am sure will be more than happy to help you in anyway they possibly can!!

I'm so sorry to hear that you also suffer from RSD and really hope you can find something to help you and ease your symptoms real soon!! I have RSD in my left leg and right arm - I developed it when I was 12 years old after an ankle sprain and am nearly 14 now!

If you need anything, please don't hesitate to ask ... I am more than happy to help you if I can and I DO understand some of what you are going through and how frustrating and scary it is dealing with such an awful condition!!

I'm so glad you have such a loving and caring family who would do anything for you! Many people with RSD aren't so lucky unfortunately because many of our family members don't "believe" in RSD and think that we are faking it ... even though they can obviously see that our legs are swollen and blue!! I honestly don't know what I would do without my mum ... she has helped me through a lot of the real tough times and is the person I can turn to whenever I need someone to talk to who actually cares. My dad doesn't "get" RSD that much and refuses to go to hospital appointments so it is really frustrating for all of us as he would sooner bury his head in the sand and pretend that it isn't happening - that's OK for him but I have to deal with the RSD on a daily basis and so does my mum!!!

I'm keeping you in my thoughts and prayers and hope to see you round here more real soon!! If you ever want to talk, know that I am here for you!

Alison.