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Old 01-28-2009, 02:40 AM
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Thanks Natalie but credit for that phrase goes to Lauren Roberts (MsladyinCA) who said it back when Tysabri was withdrawn from market!

I used both that and the argument that having to "fail" on an interferon is an oxymoron, since MS in itself IS a failure, and "failing" is a given for anyone who has even ONE relapse, to get my point across to the neuros I saw during the interim between withdrawal and return to market.

Silent damage is happening daily, even when we show no symptoms, relapses are a smack in the face dose of evidence that it's happening, and I LIKE all my neural pathways and I will be damned if I am not going to do everything in my power to keep them intact and working correctly!

I still have faith that my brain can correct the damage it has suffered through my course with this disease, and that preventing relapses will give my brain a chance to heal itself. I may not be back where I was before diagnosis but I am a lot closer than I was even a year ago, nevermind when I first started!

IT'S NUMBER 23 THURSDAY FOR ME!!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.

Last edited by Riverwild; 01-28-2009 at 03:09 AM.
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"Thanks for this!" says:
4boysmom (01-29-2009), ewizabeth (01-28-2009), Natalie8 (01-28-2009)