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Senior Member
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Join Date: Aug 2006
Posts: 1,860
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Senior Member
Join Date: Aug 2006
Posts: 1,860
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PD and data collection
Again, I think parkinson's disease is not one discrete condition but a collection of discrete conditions that all lead to a final common pathway of neuronal loss within the substantia nigra (as well as other areas). Following this theory, different patients with parkinson's symptoms may have very significant physiological differences in relation to triggers or unmasking events and thus significant differences in which treatments they are likely to respond.
Collection of data would be soooo much easier with a centaralized data base via a federally mandated patient registry. Or neurologists and MDS physicians could develop this tool--would require funding, and patient consent (re:HIPPA laws) wonder if MJFF has considered developing/backing such an undertaking? Someone with grant writing abilities could streamline the endeavor.
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In the last analysis, we see only what we are ready to see, what we have been taught to see. We eliminate and ignore everything that is not a part of our prejudices.
~ Jean-Martin Charcot
The future is already here — it's just not very evenly distributed. William Gibson
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