Holy cow!! I am SO sorry for you. I do NOT have anything like that.....yet. How long have you had RSD??? I feel kind of bad for complaining about my little twitches now!! Mine are just annoying......they won't stop and won't go away no matter how I move around......I'm not having a lot of pain with them. So....you get them all over and NOT just where your RSD is?? Thanks for writing!!! Please take care!!!