Junior Member
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Join Date: Jan 2009
Posts: 56
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Junior Member
Join Date: Jan 2009
Posts: 56
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IVIG right off the bat... had me a bit upset at first. Over that now.
My dx is SFN possibly caused by auto-immune disorder. Only they don't know what AI since all I have is a high ANA titer. All the patterns were negative.
As for the tests, tons of labs including 2 hour glucose, HIV, hepatitis, celiac and most of the standards: CBC w/differential, metobolic panel, etc. Neuro tests were punch biopsy on three sections of my leg, EMG, Tilt Table and QSART.
Neuro's nurse told me that since I've had the symptoms/damage for several years, I can't regain what is already damaged, but the IVIG might slow/stop the progression and that it should help with pain management. I asked her about other options for treatment and she told my Neurontin or Lycira. I asked about prednisone and she told me they don't treat SFN with that. I'm thinking of talking to my primary about different options, once I understand more. He has a better "bed-side" manner than my neuro and his nurse!
I've been trying to read up on the info in the stickies, and on the web. You're right, it's a lot to absorb. I'm also trying to figure out what I should do now. I'm a graphic designer, lost my job in Feb 08. Didn't realize at the time but it aggravated the neuropathy in my hands on my busy days (pain level 10) so it's a good thing they eliminated my position. But now I need to find work again soon and not sure I can go back to that kind of work. Not ready to go after disability... would only bring in @$600/mo. There is a lot for me to digest with all this...
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