Originally Posted by jeanf

Hi Ann,

I am convinced that I began developing a peripheral neuropathy about 2.5 years ago when I discontinued the use of birth control pills. I am not menopausal, but due to abnormally low levels of hormones and lack of periods, my doctor put me them when I was about 20. I was on them for about 20 years.

When I got a blood clot 2.5 years ago, I had to stop taking the bc pills. My ob/gyn wanted me to start on HRT after I had discontinued the pills for about 6 months, but my hemotologist told her absolutely not. I begged and unfortunately, he said no, and I accepted this at the time, thinking he knew best.

I am now paying for it. I was an extremely healthy marathoner and gym enthusiast with no health problems whatsoever, to being someone with joint pain, a neuropathy, and possibly osteoarthritis along with many other problems. I have also had some early signs of lupus (mainly just the rash), but the rheumatologist started me on some medication which has kept the lupus from developing. (They suspect hormone level changes play a big part in the development of lupus also.)

I have done alot of research lately, and based on facts and my own unique health situation, I believe I could have simply prevented all these health problems from coming up with the HRT.

I am trying to cope with this new information, but have really been struggling. Running was my passion. It was like a drug for me. I am now very limited in what I can do.

I wondered if you had any advice for me, as far as what has helped with the neuropathy pain (hands and feet). Have you heard of any ways to reverse or help stop the nerve damage from worsening.

I am currently having foot and hand pain. I take about 200 milligrams of neurontin a day to help.

I am also looking into what HRT to start on. I want to be very careful, because since my hormone levels have been so low for the last 2.5 years, I am concerned that a spike up to levels that are too high, might also cause problems. Do you have any advice on this? Do you think my neuropathy will improve once I start?

I would really appreciate your insight.

Thanks,

Jean