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Old 01-30-2009, 03:22 AM
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Riverwild Riverwild is offline
Magnate
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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#23 down!

Holy Moley, it's almost TWO years!

I actually am having the infusion on my anniversary date in May. I told the nurses we are going to have another party! It was a very slow day at Ye Olde Infusion Bar and Grille today, so a few of the nurses sat around and chatted with me and we reminisced about the first day and the screwups that happened the first few times (wrong mix on the very first infusion, drug didn't come on time for the second one, the itchies, etc.)

The nurses here have been with me from the start. They are a GREAT group, professionals in every sense of the word, and I am lucky to have them! They used to only do oncology and the occasional steroid infusions, but are now doing a LOT of infused drugs for a lot of different diseases. The pace of Tysabri patients has picked up and they will eventually have to open more infusion suites (everyone gets their own little room due to privacy laws)

They still make me sit there until the hour is up after the infusion. I am NOT good at waiting, but I just make myself relax and read or watch TV and remind myself that it's protocol!

Life is GOOD!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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Riverwild is offline