Quote:
Originally Posted by jadiee-x
Hi jeff, im sorry to hear youre in such pain 
the night after i have a distal end revision surgery, i had abdominal pain, sounding just like you described, stabbing pain and dull ache.
ive had this every day now for about 130 days atleast.
i have had so many test done, nothing came back with anything suspicious, apart froom fluid building up in my abdomen, ive had several abdominal aspirations, all coming back clear form infection, actually im waiting for the results of one now, as i had one 2 days ago.
My neuro surgeon thinks that the pain is caused by the build up of the fluid i have that was detected on ultrasound.
It was also possible that its adhesional pain, or irritation caused by the distal end.
Pseudocysts can also caused abdominal pain...
i suggest you request an abdominal aspiration and also a shunt tap to test for infection. If this is ruled out as no infection then i guess thats one thing of the list.
due to the pain im having, im having the shunt converted to a VA shunt, which will involve moving the tube to the heart instead, im having this done next week or the week after. Hopefully this will resolve the pain.
maybe this could be another suggestion you could ask your NS.
good luck xo  |
I finally gave in today and went back to hospital where after four hours of investigations, the emergency room doctor now believes the distal end of the shunt may be blocked with debris. He says unlike the top end of the shunt, the bottom end flows freely in the abdomen and can become obstructed. So he's ordered ultrasound of the abdomen to investigate. He says sometimes the problem can be resolved with surgery, sometimes without and sometimes the debris, if present, clears on its own. At any rate, I know have a place to start. Unfortunately, the ultrasound up here can't be done until Feb. 10, but at least now I have some answers. Jeff