I agree with 'daylilyfan': "I would hate to think that someone would not try a drug because it gave someone else a side effect, when it may just be the drug that helps them". It could be the one that gets someone back on their feet. We all try drugs with worse side effects than loosing hair. You could be the one who doesn't loose your hair. I take Neurontin, probably the highest dose allowed, & I do not have any side effects from it at all. Lyrica I gained weight & it didnt seem to help anyway so I quit it. Lactimil made me itch horribly so I quit it. Topamax, well it put me into what is medically termed "organically induced manic high" & I am not bi-polar either. So I quit it. It worked so well pain wise & I lost weight but the high was horrible. BTW, this side effect is so rare it is not even listed as a side effect. My doctor only found where this happened to one other person while researching for this side effect.

I would still advise people to try Topamax because it works so well for so many. If it does make your hair fall out & you want to quit then do it then. But you also might just not have that side effect. Also Josie took it for years before this started happening to her I think. Am I right Josie???