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Magnate
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Join Date: May 2007
Posts: 2,049
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Magnate
Join Date: May 2007
Posts: 2,049
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When is it fibro?
I am going to post this because I am alarmed at the number of people 'diagnosed' with Fibro. If I endure wrath, fine. I did my part. First, let me say, I am a retired medical professional. Let me also say, I had the diagnosis of Fibro.
Then several things happened.
I got a case of Lyme Disease and it was caught acutely, undertreated and shoved under the rug. End of this issue. However, remember, I had 'fibro' first.
Then I had a minor salivary gland biopsy done, on my own, by an oral surgeon and Mayo read it and it was consistent with Sjogren's.
Then many years later, I had an autonomic nervous system battery run and flunked it. That lead to skin biopsies to measure nerve fiber density. That came back abnormal, leading to a diagnosis of small fiber neuropathy, idiopathic.
High ANA here and there. Low C4 once. Abnormal PET scan, abnormal CT scan. A few bone fractures and torn ligaments, abnormal EGD and manometry.
Then recently, an abnormal CD4+/CD8+ ratio, with excessive T helper cells. This will likely yield some more info, which could be lymphoma or sarcoidosis.
Until a lot of tests are done, usually over a period of years, a diagnosis of fibro is incomplete. The trigger points are insertions of ligaments into bone....they are sore in a lot of people, especially in people with seronegative spondyloarthropathies.
Please for your own health, research, research, research and ask for tests that appear to be indicated.
I believe you have illness and pain and that this illness and pain could possibly one of a hundred or more entities that simply were NOT looked for due to laziness, cheapness of the system, or some other bias.
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