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Old 02-01-2009, 01:24 PM
lindylanka lindylanka is offline
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Join Date: Sep 2006
Posts: 1,271
15 yr Member
lindylanka lindylanka is offline
Senior Member
 
Join Date: Sep 2006
Posts: 1,271
15 yr Member
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Hi Ibby,
I had something very similar to what you describe for about 6 months last year. Neuro advised CR overnight (had funny dreams and no relief), GP prescribed quinine (totally useless), and I did not get any help till I saw my pd nurse specialist, who listened carefully to the timing of it (early morning very bad, could hardly walk , wearing off times, and occasionally at night) and reckoned it was from being under medicated. She prescribed entacapone, I worked out a new meds regime that included it, and have not had the problem since. She did however say that it could also happen from being over medicated, and that if that had been the case she would have tried slightly less sinemet. You are getting it after eating too - perhaps that is the key to whether you are over or undermedicated. She described it as a medication related dystonia. Hope this helps.

Lindy
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"Thanks for this!" says:
Ibken (02-02-2009)