--I know you've had a certain amount of testing done, but to your knowledge, have they done any testing for some of the hereditary neuropathies, such as Charcot-Marie-Tooth, that tend to produce symptoms like that when the feet become de-enervated?
Take a look at some of this:
http://neuromuscular.wustl.edu/time/hmsn.html
http://neuromuscular.wustl.edu/synmot.html#distalsma
http://neuromuscular.wustl.edu/time/hsn.htm
The lists of hereditary syndromes is very long, and while some are more common than others, very few neuros not at research centers are all that aware of them or the testing for at least some of them . . .