Originally Posted by Megan

So what specialty/ies juggle all of this?

A neurologist for the PN?? A gastroenterologist/motility specialist for the gastroparesis?? A cardiologist for QT interval lengthening but then who monitors if you even have this or have other emerging autonomic issues?

Also fourteen months ago soon after I first got sick with all this, I mentioned to the neurologist about how sick I felt every time I ate, with nausea, epigastric fullness and early satiety, so he did the QSART (the sweat test) and some cardiac test (forgotten the name) but he did not test for the gastric emptying even though that is what I was actually complaining about.

Should these two tests have shown up any autonomic issues even though they were not actually looking directly at the issue I was complaining about? Do these take time to become positive? Would these other tests be positive now if I had them done again?

I really appreciate any responses!