Junior Member
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Join Date: Feb 2009
Posts: 28
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Junior Member
Join Date: Feb 2009
Posts: 28
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Hey guys. First off, the meds. I take Mestinon 60mg 1-5 times daily. It's what's really weird about me..90% of the time I couldn't tell I'm weak, I just feel sleepy a lot. I'm not a very facially expressive person to begin with, so I think that helps. I mostly remember to take my meds when I start having trouble swallowing..or if I've been laughing a lot. From my shoulders down I feel pretty normal. I get a lot of muscle twitches though, and my neuro is pretty certain I'm in the process of converting to general MG......At least then maybe I could be looked at for a thymectomy.
I really haven't noticed too much. I have a 2 year old and as such, spend a lot more time at home than being outside doing stuff...as they get older I think is when I'll start having trouble adjusting. So for now, the denial is still working great. I think I'll skip anger. I've always tried to make the best out of the hand I was dealt.
More than anything I can say my wife struggles with it. She gets upset and frustrated when I have to take a lot of breaks for stuff I used to be able to breeze through.
I'll tell you, the most frustrating part of this disease..is that no one knows what it is! That, and my parents. They are both nurses as well...and they are very set in their ways about nothing being wrong with me..so when I complain or discuss it, it's met with hostility. I guess they're not up to it, and I'm not going to force it on them.
Anyhow, ty guys for the welcome and it's nice to talk to some people about this sort of stuff. Sorry I typed a novel..it's a bad habit of mine.
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