Joel Cutler, 54
Symptoms started Dec04 or Jan05
DX Aug 05 limb onset. Left hand first then right.
I was monitored and given 2 years. Found Glutathione and still kicking! Deterioration slowed down immensely, was supposed to be immobile Dec05 - still functioning quite well.
Down to 1 finger on each hand to type, but still getting around on my own!