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Old 02-04-2009, 04:22 PM
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Location: Yorkshire, UK
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ali12 ali12 is offline
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Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
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Hi Kelly,

Thank you so much for your kind words - they mean a lot!

The spasms that you are describing sound a lot like mine - my leg will jerk un-controlably all of a sudden and my mum said sometimes it looks as though I am about to kick her!! The spasms that you are describing sound a lot like the Myoclonic Spasms I have so I would definitely mention it to your Doctor and see what he/she says ... you are probably best seeing a Neurologist as they are the Doctors that have helped me the most and seem to know more about the spasms.

My Neurologists explained to me that the Myoclonic Spasms are caused by something wrong in the brain - like their is a fault in the nerves and white matter in the brain or something like that I think he said, I can't remember exactly! It scared me quite a lot but he explained that although they are REALLY frustrating, they are NOT fatal although you can develop serious muscle atrophy etc etc.

My big toe on my RSD leg curls under me a lot also - it's so annoying as one minute it can be "normal" and the next it is pointing up and in the next breathe, it is fluttering up and down and it almost looks like I have dislocated it!

I have two sorts of spams - I have the Dystonia which causes my leg to lock out to the side and stay in that position (it's been like it constantly for nearly 2 years now even though I did try to move it!) and then I have the Myoclonic spasms where my legs jerk widly up and down in the air!

I hope you get things sorted soon as I know how painful and annoying they can be - I would definitely go and see a Neurologist and see if they are able to do anything!

Please keep us updated and if you have any questions, please let me know!


Quote:
Originally Posted by kelly6449ed View Post
Hay little young lady,
again I am amazed with how much you know!

I seen your vid on here, my spasm, are lets see, if I can say this right
I jerk, at times, top part of my body, then arm most in my left will spams in a jerking, like if I was to try and hold something, I would spill it, its kind of like what you would see in someone that it older, in age, but more sever
my legs, one goes like jello, and the bad one jumps all over, the place,
if I am sitting in my W/C and try and lift my leg up, it spams a lot worse, look out I could kick you, laying down is not bad, unless its cold, then I shake,
you can also feel it inside of me, with out seeing the spams you can feel it in my muscles, one of my PTs lady's was holding on to me in the pool, and she said she could feel my muscles in my back spamming,
right now I have a shaking feeling, going on, its in the top part of my body
but its cold also, and with the spams I do get a lot more pain,
hope this helps, and no I did not know there was a dif kind of spams
dose that sound like what you are talking about? my injury was in my spine,
that is why it spend so fast I was told,
thank you, I will find out, oh they do not go out to the side, they are more of an shaking jerking, walbing cant spell it, ugg

take care Ali,
and thank you for your wisdom beyond your years, and kind words,
smiles
Kelly
PS also you can see my big toe, on my bad foot spams like it is trying to curl under like the rest of them are, something it dose join the rest of them
that is odd to see,
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