I think Ali is right......they need to consider Dystonia and Myoclonus with you. It sounds a lot like that is what is going on. There ARE various meds that could help you with that. It may take some trial and error to get you dosed properly, but you would feel so much better and hopefully have more mobility. Don't worry about your spelling. We're all family here and we know what you're saying!!

When is your appointment with your neurologist??? You mentioned problems with your toenails?? Is it in the affected limb??? I'm sorry if you're having to repeat a lot of information. My brain and memory are foggy and I can't keep things straight anymore. ANY doctor that knows ANYTHING about RSD knows it affects the nails. My toenails have all but quit growing. I haven't had to cut them since I got RSD (2 months ago).

I hope you're able to get some help.....and a BETTER doctor.