Thread: DX... finally
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Old 02-04-2009, 06:56 PM
ru2l8 ru2l8 is offline
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Join Date: Dec 2008
Location: tx
Posts: 17
15 yr Member
ru2l8 ru2l8 is offline
Junior Member
 
Join Date: Dec 2008
Location: tx
Posts: 17
15 yr Member
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Quote:
Originally Posted by mrsD View Post
with big words, when they have NO CLUE. This tactic is very effective with just about EVERYBODY...

In the case of this "diagnosis" followed by total ignorance of B12 and how it works...I decided to search this.

http://www.neurology.org/cgi/content/abstract/56/1/82
How rare is it? Totally so rare that less than 10 people have been written up. And those only had one person with some sensory loss.
Another:
http://neurology.jwatch.org/cgi/content/full/2001/328/1

This diagnosis of course, has no PROOF. But the big words do work a placebo magic of sorts.

Do this: Ask your doctor if you should avoid flu vaccines in the future. I'd be very interested in this answer. (most neurologists blame vaccines for GBS).
We've had patients on this board (and its sister that preceded it) for over a decade who developed GBS after vaccines.

In general when there are no "footprints"...doctors blame viruses. But the proof is always lacking. "Post viral syndrome" is more accurate, than sensory GBS, IMO.

A neighbor of mine had GBS following chemo for breast cancer. I watched her decline within HOURS to a vegetative state. I called her husband from out of town to come home, EMERGENCY and she ended up in the hospital for WEEKS...and luckily recovered with plasmapharesis (which was rather new at the time). There were MANY on her floor with the same diagnosis who could NOT afford the treatment, and they remained permanently paralyzed.
You are such a help to so many people Mrs D. I have read so many posts that you written and I appreciate you, your thoughts, and experience!

Dr says GBS was b/c of initial virus and the flu shot in OCT caused a relapse. He said NO vaccines for two yrs. He said that it is very rare and I am lucky that it is only sensory and mild weakness in muscles. He also said that I am perfectly healthy otherwise and all symptoms will go away and that once I get over it I am no more likely to get it again than anyone else. According to him b/c there is no paralysis most Drs would miss the diagnosis, and that is why it is a subset of GBS. He said there are sensory ad motor versions and I have a mild case of sensory.
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