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Old 02-06-2009, 05:58 PM
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4boysmom 4boysmom is offline
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Join Date: Jan 2008
Location: Idaho
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4boysmom 4boysmom is offline
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Join Date: Jan 2008
Location: Idaho
Posts: 164
15 yr Member
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So, if you go by the numbers Riverwild posted, you have 8 people getting PML out of almost 40,000 on the drug?

However you disect the numbers, that is still pretty rare.

My neuro was just telling me at my appt. yesterday that in his research that an acceptable number could be as high as 7 out of 1,000 risk and it would still be beneficial to be on the drug. I don't know that I agree with that, but he must be looking at it from a practicioner's point of view.

I guess if it meant life or death kind of a situation, I would agree. But MS is such an unusual disease with many different manifestations in different people.

I just have to look at my life, and what it is doing for me. I'm not worried about getting PML, and MS is not really affecting my life in any great way. If Ty keeps it that way, then great!

Having said that, I'll be having my first MRI after being on Ty for 10 months. I'll let you know how that turns out on Monday!
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