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Old 02-07-2009, 02:21 PM
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lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
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I think it might be kinda' hard to assess our short-term response to LDN, unless we have a long history to look back on with this disease.

Prior to going on LDN, I had had a couple of attacks that were very bad, and one I recovered really well from, yet the other I didn't. I probably went from an EDSS of 1 to an EDSS of 9 within a few days with both attacks, but I never did recover past a 5 or 5.5 with the second one, even after 2 yrs.

I started on LDN, and I reduced my EDSS by one point in 9 months, and I have stayed there ever since. That part was clearly due to LDN.

We should expect to recover substantially from most "normal" attacks, USUALLY ... especially in the early years. The goal is for LDN to help reduce the symptoms further, and hopefully keep us relatively stable after that.

Cherie
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