Hi Kelly,
Thank you SO much for your kind words ... I really appreciate them and am so glad that I could at least try and help you even if it was just in a small way!
I'm so sorry to hear that your back and spine is so badly damaged and I really hope you can get it sorted real soon! I have spinal issues also although they have never been diagnosed - my PT's say that I am extremely bent over and I can't sit up at all. If I try and sit up, I just go into a slouching position straight away and it really hurts me! When I was on the Intense Physical Therapy Program at Great Ormond Street Hospital, London, a girl there had really bad Scolosis and she had a LOT of the same symptoms as me!! I did mention it to my PT's and they didn't really say anything and didn't seem that interested but still to this day, I wondered if there could be an underlying problem other than the RSD and the long list of other health conditions that I have!!!!
I really hope you can find a Physical Therapist that can help you and that will go easy on you! I would definitely look into the weight exercises that I told you about and see if they work for you or not - I have the website to where you can get some weights if you would like me to send them to you!!! Over here in the UK, we can only get PT's IF we go to the hospital and it's so stressful and painful trying to get ready and then travel there and back!! I wish you could find one that could come to your home as I am sure it would help you quite a bit - even if it is just in a small way, it is so much better than nothing!!
I'm thinking about you and if you need any help, you know where I am!