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Old 02-08-2009, 06:08 PM
MominPainRSD MominPainRSD is offline
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Join Date: Dec 2008
Posts: 264
15 yr Member
MominPainRSD MominPainRSD is offline
Member
 
Join Date: Dec 2008
Posts: 264
15 yr Member
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Quote:
Originally Posted by angelrsd View Post
mom i also have tmj and have the same thing i was told that when there is swellin in the jaw joints that is press on the ear canal and that what the hearin loss comes from i also get the feeling like somethings in my ear tickiling it almost or feel like i have an ear infection . my mediciade wont pay for tmj they only thing i get is steriod inj for the jaw at pm becuase i get lock jaw so bad that only general anesthia reverse it ]
this possible the cause
Hi Carrie,
My TMJD has been a thorn in my side for 4 years now. I have not missed a day during that time having to take Advil constantly for the pain (yes, to all....have had a liver and kidney screen that showed no damage....yet). I wore the custom mouthpiece made for me by a TMJ specialist for 10 months. My symptoms got worse. I was referred to a surgeon. He did the arthroscopic lavage (under brief general sedation) and an injection with steroid that locked my jaw shut for 2 months. I was on a liquid diet twice that long until my teeth started feeling loose and I gave it up.

There is NO cure or reliable treatment for TMJD. You're not missing anything but a lot of extra tests and expense. Thank goodness a tomogram showed that I was not a surgical candidate because I was one step away from having a condylar repositioning (where they go in and file down the bone to fit differently in the joint). That was just last September.....three months before my RSD started.......I feel certain I would have gotten full blown RSD in my face.

I am CONVINCED that there is a link between my TMJ pain and my CRPS. My ear hurts CONSTANTLY and I have always described it as a burning, searing pain......like someone has stuck a hot poker in my joint (LONG before I knew anything about CRPS). It happens to be on the same side of my body as my CRPS (in my left ankle). I can take my temperature with an ear thermometer and the temperature is several degrees warmer in that ear than the other in the absense of an infection. I just can't "prove" it or get anyone to pay attention to the possible connection. Other people on the forum have posted articles suggesting there is one, however.

I am so sorry for your suffering. I TOTALLY understand your pain.....and the chronic pain that you endure.....not just from the TMJD but from the CRPS as well. Are there any more acronyms we need to include in here???

Best wishes to you!!!
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