Quote:
Originally Posted by jezzka
Hi there!
OMG I have been diagnosed with exactly the same thing! Benign Intracranial Hypertension.
I haven't really noticed many symptoms yet - I just noticed a few blotchy spots in my right eye mainly but I put that down to being tired. I get headaches and stuff which pain killers don't really do anything for, but I thought what they hey - it's been 5 years, why not get my eye checked out!
I went to my optom - there was some concern there he says. So he refers me to the Eye specialist who finds that my optic nerves are definitely swollen. He gives me some reasoning for this but the only one I heard was TUMOR! And I'm only 25!!!
From here he refers me to get a MRI scan, then it turns into a CT scan first then maybe MRI. Then it's changed again - a CT scan, then a LUMBER PUNCTURE! Holy crap!
I'm pleased to say I had an MRI done about a month ago and it's not a tumor! So I have been diagnosed with Benign Intracranial Hypertension.
They have to take a Lumbar punture to measure the pressure to see if that's definitely the cause. My first 5 lumbar punctures failed  I had a horrible headache for days but I put that down to incompetence of the New Zealand Health System. I go back for hopefully a successful one on Tuesday....
IF this is the case, I've been told weight loss healps (i'm 90kgs and should be about 65 for my height) which makes me the perfect specimen for benign intracranial hypertension! go figure. My doc is going to put me on weight loss, and then to reduce the CSF (cerebrial spinal fluid) accumulating around my brain to relieve the optic nerve swelling that could eventually lead to blindness, there is the option of drugs or a shunt being surgically installed in my neck to ask as a pump to push excess fluid out of the brain!
God that was a marathon writing that - but I hope that helps you and any one that could help me out as well with any information they have that would be so appreciated! As to be honest - I'm not keen about lumbar punture number 6 on Tuesday |
Hey thanks for the reply. I was just wondering would you or anyone else know if any one has fully recovered from this or if you or any one else is recovering and getting better. I have only had this for 8 months and already since my first follow up LP I have noticed that my eye sight has improved very much, I no longer have ringing in my ear and I no longer have pulsating pressure in my head when I stand up or basically do anything. Although I am still having tiny migraines now and then with this weird feeling of blood pumping hard through out my body especially my head and still have pins and needles in my arms now and then and hands. Do you ever get the feeling of blood pumping hard through out your body or head? or do you ever get pins and needles now and then OR are you having what I have been having where the head aches are ALWAYS on one side of the head and the ringing is always just on ONE side of the head and the pressure feels worse on one side of the head?