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Old 02-09-2009, 10:34 AM
Brennan068 Brennan068 is offline
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Join Date: Oct 2008
Posts: 313
15 yr Member
Brennan068 Brennan068 is offline
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Join Date: Oct 2008
Posts: 313
15 yr Member
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Scary times Barbara; I went through the same last April/May.

I think the bloodtest that takes a month is for the acetylcholine receptor AB (or at least mine took a month or two to get results back. ) The general AB or white cell test is quite quick with results within a day or two. Specific AB tests like the acetylcholine receptor take some incubation time in specialized labs. I don't know how long MuSK AB tests take to come back; you may have had that sent in as well.

Unfortunately, nobody can really tell you how bad it will get for you. Most everybody has different levels of disability caused by MG. It sounds like your neuro is on top of things though, you should be well managed and be able to lead your life mostly unchanged. Expect days when you're dead beat exhausted; listen to your body and rest when that happens. Your husband will need to pick up some more slack and help more than he's used to with your two children and you to get through this.

Best of luck and feel free to shout out any questions you have.

Cheers,

Brian.
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"Thanks for this!" says:
BARBARA356 (02-16-2009)