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Old 02-09-2009, 04:29 PM
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ali12 ali12 is offline
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Join Date: Jul 2007
Location: Yorkshire, UK
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15 yr Member
ali12 ali12 is offline
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Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
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Hi Rich,

I haven't had the Deep Brain Stimulation (DBS) however my Doctors have said that it might be worthwhile as a last resort as I have very bad myoclonic spasms in my RSD leg!

One of my friends, who has severe RSD and posts on here sometimes (Rosie) has also said that her Doctor has recommended it however it could cause a potential spread or make her RSD a lot worse because of how severe she has it!

I would look into the treatment IF nothing else worked however, I think it is VERY risky and it is something that you would HAVE to do a lot of research into before agreeing to have the operation and weight up the possible benefits and risks as I am sure you have done!

How well does the DBS work for you???? I hope you are getting some real good results even though it is still early days and wish you the best of luck!!
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