So I usually see my MS Specialist once a year for LTD purposes (whether I need to or not), but I made an appointment early this time so that I could talk to her about the possiblility that I may have Devic's/NMO. We talked for a while, and then she suggested minocycline to add to the LDN. We've had that conversation before, because I seem to get lots of infections that stir up the MS, but had decided not to at the time as I had had an allergic reaction the last time on Tetracycline.

I decided I'm going to try it again though.

After talking with her, she arranged for me to meet with her PA to go over the latest trial opportunities, and for me to get the rx of minocycline. She came in and the first thing out of her mouth was "where is the best compounding pharmacy locally for people to get their LDN?". Her next question was "what side effects might some people get?"

It seems they are rxing LDN from there now too, just as my last MS Specialist got on board eventually. I never asked any questions about "how many people are asking for it?" or anything, I just went along like I am not surprised that some people would be requesting it.

I have only had one MRI in almost 18 yrs, so before sending away my NMO-IgG testing (for Devic's), my Neuro has decided to do another MRI. She wants to see what has changed since 2003, and how big my spinal lesions appear now. The last time I didn't have gad-enhanced, so there really isn't going to be a good comparison, but at least we can have a solid "view" to go forward from now.

Interesting meeting.

Cherie