I just love the feeling! I know that some people have a hard time with it, but I get 5 400 ml bottles and they can crank that baby up to 360 ml an hour - I've never had a reaction.......it just feels so good! The plasma exchange is the one that really gets me - too gross for words!
I am @ 60 mgs right now of pred, but have been able to taper down my mestinon to 2-3 pills a day ( I was up to 7-8 before) and the GOOD effects of the pred are kicking in - love the energy! Not manic - just being alb eot get off the sofa and get some work done.......
Going to see my onc tomorrow for more blood work - finally getting over the whole blood/needle issue!
Thought that day would NEVER come!
What a great day!!!!
How do you handle getting around? Do you have much strength?
Erin
Quote:
Originally Posted by sabimax
woohooo for buzzes and energy, that is how I get when taking oral Prednisone for my symptoms when they get really bad, I am undx..
just wanted to say glad you getting some energy and somethings done..hugss,sarah
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