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Old 02-10-2009, 10:03 PM
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Riverwild Riverwild is offline
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Join Date: May 2007
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Quote:
Originally Posted by 4boysmom View Post
Bad news from Brenda tonight! I had an insulin resistance test yesterday morning, and my MRI in the afternoon. When my neuro's called and left me a message to call her back, I feared the insulin test was bad!

It shows I have a moderate level of resistance, and I'll have to come in and talk about that further. It could be good in that it will force me on a diet, possibly with medication, to get my weight and insulin under control. I was expecting as much since my dad is Type 2, I'm overweight, and I have high BP.

I was not expecting a bad MRI ! The MRI showed two more lesions and that my disease is progressing. I will be going in for an antibody test on Thursday along with seeing my neuro! I just don't get it! I don't have any symptoms other than that tingly hand and being a little wobbly with balance at times.

My mind is as good as ever! My eyes get blurrier when tired lately, but I've never been on steroids for any of this MS stuff! I wouldn't even know I had the dang disease if I didn't have the MRIs. My neuro must be worried also. He can't figure out why the disease is progressing on Ty unless I have antibodies.

What am I going to try next if I have antibodies? On Avonex, the disease progressed. Rebif, disease seemed to stabilize but I itched all over, had a patch of psoriasis that didn't go away, and was tired all the time. Neuro thought it was probably allergic reaction of some kind. I'm guessing he'll try Copaxone, but I don't know!

I'm very discouraged tonight. I thought everything was going so well, it just through me for a loop! Add stress from work and the world is not pretty tonight.
Brenda,
Jeez, where's the good news? I think you should try NOT to worry (I know that's easier said than done) until you talk to the neuro personally and find out the results from the antibody test.
Was your last MRI before you started on Tysabri? Is it possible that those lesions were there before you started?
Write down all the questions running through your head before you go so you will remember them and ask them.

TRY not to stress until you have more answers!
Let us know what comes out of it all. We're pulling for YOU!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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