Hi Brenda,
I'm sorry you are feeling so down tonight. I'm sending you positive thoughts.
This is such a stinker of a disease. Does the neuro think the MS is progressing because you have 2 new lesions? What if you were not on Tysabri -- is it possible you might have developed 10 lesions or 15 lesions? Perhaps the Ty. is working to some degree. I hope you do okay with the antibody test. If you're feeling crummy just remind yourself that pills are about to come out soon--in the next year or two. There are lots of drugs in the pipeline. I see hope in your future. I have a file full of websites I go to when I feel down and need a pick me up -- they all involve positive news about future research and drugs. If you need some, PM me and I'll send them along! And there is some good news. You are having minimal clinical symptoms STILL.
Take care of yourself,
Natalie
Quote:
Originally Posted by 4boysmom
Bad news from Brenda tonight! I had an insulin resistance test yesterday morning, and my MRI in the afternoon. When my neuro's called and left me a message to call her back, I feared the insulin test was bad!
It shows I have a moderate level of resistance, and I'll have to come in and talk about that further. It could be good in that it will force me on a diet, possibly with medication, to get my weight and insulin under control. I was expecting as much since my dad is Type 2, I'm overweight, and I have high BP.
I was not expecting a bad MRI  ! The MRI showed two more lesions and that my disease is progressing. I will be going in for an antibody test on Thursday along with seeing my neuro! I just don't get it! I don't have any symptoms other than that tingly hand and being a little wobbly with balance at times.
My mind is as good as ever! My eyes get blurrier when tired lately, but I've never been on steroids for any of this MS stuff! I wouldn't even know I had the dang disease if I didn't have the MRIs. My neuro must be worried also. He can't figure out why the disease is progressing on Ty unless I have antibodies.
What am I going to try next if I have antibodies? On Avonex, the disease progressed. Rebif, disease seemed to stabilize but I itched all over, had a patch of psoriasis that didn't go away, and was tired all the time. Neuro thought it was probably allergic reaction of some kind. I'm guessing he'll try Copaxone, but I don't know!
I'm very discouraged tonight. I thought everything was going so well, it just through me for a loop! Add stress from work and the world is not pretty tonight. |