I don't necessarily think the conditions are related, I actually believe that somehow I have RSD in the TMJ joint, that preceded my RSD in my foot by 4 years (at least). I have had various MRI's, CT scans, Tomogram......all of which showed bony degeneration but nothing wrong with the joint itself otherwise. RSD causes bone degeneration once advanced. Have either of you had diagnostic tests that showed the same??
TMJD is SO difficult to treat. Pain is SO subjective. AND, to make it worse, most affected by it are women in our age group with a history of anxiety and/or depression so the docs toss it ALL off as that. Uggghhhh.....I am so sorry for your treatment by these docs. I have experienced some of the same. I had one doc tell me that my problem was that I "looked too good" (I had on makeup and was dressed nicely, as I always try to do) and they didn't believe something was actually wrong with me. He went on to call me a "nut" to which he got a VERY nasty note from me (he actually called me at home and apologized and talked to me for 20 minutes).
Anyway, my TMJ pain has gone through the roof since my diagnosis with RSD. I am wondering if it is not a flare in both places??? I may be WAY off track but I am curious about OTHER'S experiences. Thanks for taking the time to write and share your stories!!