I haven't been on Dr Sherry's program however I have been on a VERY similar program in the UK at Great Ormond Street Hospital for Children with RSD! The Program run for 3 weeks and it was extremely hard and painful, however if I didn't go there, I would probably still be in a wheelchair now!! When I went onto the PT Program, I was wheelchair bound and when I came out 3 weeks later, I was able to walk short distances for the first time in over a year!!

My Pain and Dystonia (my foot is rotated at a 45 degree angle) didn't change at all from the first Program so I was told I had to go back for a second time. I went onto the Program in September for another 2 weeks and it didn't help me at all but I honestly think that was because my Physical Therapist wasn't able to spend that much time with me as she was at a conference in San Fransisco about RSD and other pain-conditions.

I have to return back onto the Program in April for another 2 weeks and the PT's are going to try and help with my pain and the Dystonia to see if they can get that under control any ... if the program doesn't help this time then I have been told that I will have to have my leg put in a full leg cast as a last option which I really don't want to do as I have read so many horror stories about it!!

My PT's explained to me that the only people that get better are the ones that put 110% in the Program and actually WANT to get better and wont give up ... unfortunately, too many children give in within a few days just because the pain is too bad and you absolutely shouldn't do that! I'm not saying the Program was easy for me - it wasn't at all and was the hardest thing I have ever had to do in my entire life BUT if it wasn't for that Program, I would still be in a wheelchair to this day!! My pain hasn't changed and is still at a constant 8 and a half on the pain scale but I have been given techniques to try and help with that and it makes such a big difference to my life being able to walk, even if it is just short distances!!

If any of you going on a Program would like to talk to me, please let me know as I have been there and I KNOW just how hard and painful it is however please don't give in - as my PT's and Doctors say, we are in pain all the time so we may has well be in pain and do something!!