Hello again! What were the reactions? Other than being thirsty, I feel AWESOME! The plasma exchange is what I cannot stand-----too invasive and grosss and I feel tired for a while..........
I see my neuro in the 24th - gonna ask him for monthly maintenance - hope it goes well.....still waiting for my central line......he is fighting me on that one
Erin
Quote:
Originally Posted by Gdbyrd
I'm pretty interested in getting this someday..I've given it a LOT of times, and the reactions, albeit infrequent, are no fun at all.
Very glad to see it's helping you out! Everyone I've ever given it to loves it, only 1-2 kids got sick with it..aside from the reactions. Otherwise it's AWESOME!
I had several patients that would get it monthly when I worked at the hospital. However, none of them had MG. Hopefully you get something worked out with your neuro so you can get it more frequently.
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