I haven't heard of a BI Pap machine, I will look into that.
So the fact that my oxygen has never dropped more than two points doesn't matter? My only problem with getting help with breathing is that when I have the problem my whole body is so weak I can't communicate, with anyone, or move. I just don't know what to do here.
I have a muscle biopsy on Friday they are hoping to find out exactly what is happening. I had an exercise test a few weeks ago that showed a possible myopathy in the blood work so they are doing the muscle biopsy to find out which one.
They are thinking I either have Myasthenia Gravis or Periodic Paralysis. I just want to know what's happening. I have had weak spells every day for over a week and a half now, usually I only get a few a month plus just no energy.
In my most recent weak spells I have noticed that if I lay down to rest and just try to sleep it off or think of something else I will have a noise or something startle me and feel like I have not really been breathing. As long as I focus on breathing I can breath well enough to keep me alive but it's still a struggle. I don't know if this makes sense I'm having a hard time thinking tonight, happens all the time for me but it's worse when I'm tired.
Sorry this is so long, I just feel like I might be close to an answer and the people here seem to be able to relate to what I'm going through, usually I just get people who think it's depression.
Thanks again for the info and support.
Kristie
Quote:
Originally Posted by teka8
oxygen level can be good, has nothing to do with breathing problems when the MG attacks the lungs.Do you have a BI Pap Machine? Do not ignor any breathing problems
|