Originally Posted by Gdbyrd

Very sorry to hear about your situation....People our age shouldn't have to deal with this sorta stuff...EVER! But like Erin said, it's going to get better!

Bi-pap is a machine that puts positive pressure on your airway, usually you use it when you go to sleep. It's a mask that you wear and it's connected to a machine. It keeps a constant small amount of pressure, it makes breathing somewhat easier.

The issue with the pulse oxygenation...our bodies are amazing. We can compensate for long periods of time..sorta dealing with problems. Usually it's at a cost of expending more energy. Unfortunately what usually happens is you'll crash when your body has used up all of your reserves and exhausted your compensatory mechanisms. As others have said, it's very important you pay attention to any respiratory problems you're having. I would go see your MD as soon as you can to get that under control.

Have you had any antibody tests performed? What about CT scans of your chest? I have been told that most MG in our age grp is caused by leftover thymus tissue..so they should have seen some remnant on your CT if you've had one. My neuro, at one point in time, had told me that myopathies are more likely than MG..at least for us.

Hopefully you don't have MG on top of what you already have, you're dealing with too much as it is! Hang in there and let us know how it goes.