Hi guys, I just wanted to add my 2-cents too.

Erin - I totally agree about the lists! My husband teases me and says I have lists to keep track of my lists. They are a necessity though - otherwise I think I'd lose my mind. The other night I was really out of it and called the toilet the oven (maybe that's why my cooking is awful, ha ha) and then proceeded to use my husband's toothbrush without even noticing it! So weird.

Gdbyrd - I can empathise with the "hot brain" thing. I was diagnosed when my husband I were both in university. My husband was taking a neuroscience course and had to explain to the entire family what was going on with me. I still turn to him when people need an explanation. It was really awesome that he could understand the inner-workings of my cholinesterase receptors!!

Kristie - welcome to the site, I'm sorry you are struggling to find a diagnosis that fits everything. When I read your posts all I could think is "She needs to see Dr House." Too bad that's only a tv show! When i was diagnosed my neurologist did a really simple test you could do at home. It's not definitive, but it might help you if you get a result. I call it the chicken test and you'll need your partners' help. Hold your arms up (fists in by your chest and arms folded - shoulder height... hope that makes sense - it's hard to explain in words). OK now that your arms are up get your partner to push gently on your elbows, trying to push your elbows down towards your sides - you fight to keep them where they are. They should not use too much force, just enough to try to over come you. They shoudln't be able to at this stage. Next step is the chicken step - flap ONE ARM 20-30 times until it starts to feel a bit tired. Now put both arms up again and get the partner to push again. The arm you've been flapping should be fatigued and you won't be able to support it even trying your hardest. You can use the same type of test for your legs (lifting off a flat surface while lying back), or eyes (looking upwards for an extended period of time and looking for a droopy lid). I hope i explained all that alright. I remember when my neurologist first did this - I cried because i was so grateful that he could see what was going on.

Anyhoo, I hope this helps! Stick in there - I'm sure you'll get your answers!

~Kathy