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Old 02-12-2009, 06:01 PM
dave80909 dave80909 is offline
Junior Member
 
Join Date: Feb 2009
Location: colorado
Posts: 10
15 yr Member
dave80909 dave80909 is offline
Junior Member
 
Join Date: Feb 2009
Location: colorado
Posts: 10
15 yr Member
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Hi sissy

Be careful is more than just advice...it's my way of life now.
I have found i get along fine with the generic...I just had to
take a lot more of it to get my level right. I had several seizures
until I finnaly got my blood level of it right.

It's different for eveybody, how the drugs work, and getting
our formula just right is the hardest part of siezure control.
It can take years as it did for me. I finnaly got my blood
level right, got a pill case, and take them religiously, or I
sieze.

My problems occure when that blood level is messed with.
I took the brand name for years until my insurance co.
insisted I take the generic. It wasn't the first time, every
time my insurance chaged I went through this, I gave up.
I took the same amount as trade...seized..upped it again,
tested the level, seized...on and on it went.

Finnaly I got it right and had it controled for years. When
I went into the hospital I just didn't realize that the difference
was so much for me and took the brand name. Next time if
I"m admitted...I'll take my own meds and pill case, I don't
care what they say, this is too critical, i'll walk out if nessesary.

Those people don't understand what we went through to get our
formula right. They dont understand what it's like to wake up in
the ER with a thousand doller medical bill, or in my case a horrible
injury...they caused.

Talking to several medical pro's, this is no big secret. I was dissapointed
that my Nuerosuregon and the hospital seemed to have no reguard
for either the medication differance or my blood level in the matter.

I would like to warn anyone reading this, if you switch your medicine,
even from brand name to generic, be awful careful. Test your levels
make sure your in the good level range and not too low, or toxic.
I have been both, either is really horrible.
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