I've come across a couple of new (new to me) websites that I thought some here might find helpful. I haven't really taken alot of time yet to read everything on there but they sound promising. I can't remember if we're allowed to post websites on here or not but if not, maybe Jo can put the information out there correctly. The first one is: "butyoudontlooksick.com" and the other one is: "http://rarediseases.info.nih.gov/undiagnosed".