Quote:
Originally Posted by Av8rgirl
That was going to be my next question - a link between MS and CRPS! My PT guy asked me about that today as I was asking him about a precipitating event for CRPS. Wondering if it was the MS exacerbation I had in mid-November and/or the pinched nerve or what????  He said there doesn't always have to be a precipitating event. The doc confirmed that so...here I am, in the minority AGAIN!!
I am not one for depression. Never have been so don't expect this to put me there either! If I was, I would have been there already having been in pain like this and without the use of my arm since Mid/end of November! I look for the positive/funny side of things and don't dwell on the negative. Besides, I have so much on my plate right now, who has time!!!
I am learning to be left-handed which is hilarious because I am soo right handed it is ridiculous!
PT is a challenge but he is good and very patient with me.
Thank you everyone! I know my thread in MS has been a very long saga on my ongoing search for the cause of this pain but at last there is a light at the end of the tunnel! It wasn't exactly what I expected, but at least knowing is better than not knowing. It was like being dx'd with MS. Relief. Now we get on with the tx.  |
It sounds like you have a great attitude!! That really helps me, too.....trying to be upbeat and as optimistic as possible. Do not be surprised, with an additional diagnosis of RSD, if you find yourself more moody than you're used to being. RSD does tend to affect the limbic system over time, so many of us struggle with depression for the first time in our lives. A lot of us struggle with sleep, as well, also due to changes in the limbic system. These things do not happen to all with RSD, I only mention it so that you can recognize the signs in case it does and it won't alarm you. Many of us take an antidepressant to combat both the depression and the pain. Others have found other homeopathic remedies that work for them.
I am SO glad you've had relief from the nerve block. That is encouraging!! You may find that you will need several over time to keep your pain levels down while you're doing PT to regain the strength and mobility back in your arm/shoulder. That is the most important thing to keep the pain down, to keep the affected limb moving so that it doesn't freeze back up on you. Another thing that is very important with CRPS AND MS is to NOT apply ice (you probably already know that). It destroys the myelin sheath that covers the nerves which exacerbates both conditions.
You can search on this forum and find answers to almost every question imaginable! There are so many kind and caring people here that posted on almost every topic possible. It is a wealth of information and knowledge from people that have actually lived through it, not just read about it.
Thank you for sharing your story with us and welcome to the minority!!
RSD is a very rare condition in itself. You can just say you really are one in a million!! Take care and keep us posted on how you're doing!! It's nice to have you aboard!!