Quote:
Originally Posted by Av8rgirl
I know I have a lot to learn about this new dx, but I feel the same way I did about this as I did when I was first dx'd with MS.
I am not going to obsess over it, I can't. I have a very sick Mother right now who is in the hospital and I need to support my sister.
Thanks for the tip about the ice, but I figured that one out all by myself! (Well, Shappy aka Shelley helped me just a tad with that one!) Heat helps wonders. I bought myself a lavender and flax wrap blanket for Christmas that I have been practically living in when I go to bed. It not only smells good but the heat is great. I think I've worn out my heating pad. I picked up some of those microwave gel packs last week and rotate them. They are great!
The PT assistant tried to put an ice pack on my shoulder today after the ultrasound tx and I said no.
I am looking forward to my trip to Seattle on Wednesday for the Trade Show. I know the flight will be a bit awkward but I can handle it. Afterall, I travelled with a broken ankle, I think I can do this!
I see I have some research to do before I see my MS neuro on March 6. Not sure what info she has been receiving from all this, but I think she's a bit in the dark! Could be an interesting visit with her!
Take care everyone!  |
I am so sorry to hear about your Mother. It is so hard to deal with our own pain and problems and you sound like a very strong, positive person to be the support for so many other people in your family!
One tip I've learned from this forum about flying (I haven't tried it yet, but may need to in the near future) is to stay more hydrated than you think you need to. Sometimes the pressure changes in the cabin can exacerbate the RSD.....you may notice more pain or swelling during or immediately after the flight. You may want to make sure you have the appropriate meds needed in case you need them while still in the air.
You are noticing the frustration that so many of us have regarding doctors. So many of them have never really heard of RSD and most have not treated it. I think most of us here feel responsible for our own treatment, learning as much as we can to protect ourselves against well-meaning but uninformed health care professionals. It is a good idea to read as much as possible to educate yourself, but to stop short of overwhelming yourself (note to self!!
).
We are so glad to have you on our forum. I hope you will find it helpful and we always welcome new ideas and insight from new members (well, new at least new to the RSD forum....not to NeuroTalk!!). Best wishes to you!! Please do keep in touch and let us know how your flight goes next week!!