LizaJane Hi. I did not entirely understant your problem, but I am in bed all day because walking on my feet is so painful because S1 was damaged during a back surgery and hard telling what else. Sensory nerves are damaged to the point I have strange symptoms of cold feeling/hot burning/electrical impulse gone wild and large seeping sores oozing on the bottom of my feet. These are not real only it is how it feels. SO I get from your message that maybe I should walk anyway to keep my muscles strong in spite of the sensory insanity?
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Originally Posted by LizaJane
My neuropathy began in 1996. By 1999 I had two abnormal EMGs. I think had a bunch of other abnormals. I went to Mayo and had more abnormals.
Today I had an EMG as preparation for spinal surgery and the sensory nerves were normal. I haven't gotten the final report, but he neurologist who did the test said all nerves were normal, except my peroneal, which have never been normal. I do have a new L5 radiculopathy with denervation of the L5 muscles on the left, but it's not new enough to be causing my pain. (that's from the spine)
After seeing the results, one of the neuros said: That means the original diagnosis was wrong, and you never had neuropathy!
Yah, right. I told them I had learned how to care for it--the secret is feeding the mitochondria needed to grow axons (CoQ10, acetyl L carnitine) and taking antioxidants to keep inflammation from causing harm. In addition, keep using the muscles, whether you feel them or not. That was the secret I learned on this forum.
And really, my symptoms are so small compared to 10 years ago. Yes, they're not gone, but they are not that significant.
It can be done. If you've got an idiopathic small fiber neuropathy, or long fiber, and don't have an ongoing CIDP or Sjogren's picture, your peripheral nerves can heal.
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