Jeanne,
I, too, am very sorry to hear of your daughters health problems. As the Mom of 4 kids, I can't imagine how hard it must be to watch my child in pain or have ongoing health problems. It's bad enough knowing they have to watch ME live like that. It sounds like you've got some very competent docs who are taking good care of her. She is also very fortunate to have such a caring, thorough Mom that is trying everything to find solutions to help her!!

Please know that we are all here to offer support and insight whenever you need it! I look forward to hearing an update from you in the near future!!!