Cheryl,
Boy can I relate to you. I am going to Mayo clinic in Minn in January.
I had a thyroidectomy in Nov of 1995 and a hysterectomy in Feb of 1996.
Talk about a hormonal nightmare.
I go through the same thing with the synthroid, 100 mcg. Even with a tsh of 0.02 I have gained 20 pds and next to starving myself there is no way of shedding the pounds. They can't figure it out.
I tried the armour but my levels fluctuated even more. It is so frustrating!!!!!
Who would guess that that tiny butterfly shaped gland controls so much of our metabolism.
All of my endocrine glands have either been removed or compromised.
MG is the thymus, I have an atrophied right kidney, hyper/hypoparathyroidism, no ovaries or thyroid. That just leaves my pituitary, which is the master gland.
After years of declining health, lots of specialists and one medical issue after another, finally............. they have all cried UNCLE and I will go to Mayo to see a neuro Opthamalogist and an Endocrinologist.
My situation requires doctors who can look at the big picture. I have no complaints about my doctors, but specialists deal with their own area and now it is time for the big guns.
They are thinking perhaps a pituitary tumor/Cushing's. I will let them be the judges. I keep trying to figure it out and am driving myself up a wall. So, I will let them poke, prod and test. I am positive they will diagnosis and fix me.
Have they checked your other endocrine glands besides the thyroid? Seems to be the popular first place to check. Do you have any vision problems? A obital pseudo tumor that has not responded to high dose prednisone therapy is what has led them to think more pituitary or endocrine problems. It has been a long road and maybe something I have said may help you and your docs. They are only human and it is funny how the entire body is linked so goofy. You are right, doctors are great but we know our own bodies best.
I wish you the best of luck and it really gets old feeling crummy a majority of the time. This last year has been my worse, but maybe that is meant to be so that I can get to Mayo and be ME again. I am fifty going on 90. LOL
Good luck to you,
Judy