Thread: I'm done
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Old 02-16-2009, 10:38 PM
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dmplaura dmplaura is offline
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Join Date: Jul 2008
Location: Moncton, NB, Canada
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dmplaura dmplaura is offline
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dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
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Wow, a lot of feedback, thanks all

I really truly feel that this is the best for me at this time. I'll have to look into LDN. I know a compounding pharmacist that could probably do it, it's getting it prescribed that can be challenging.

I'm going to miss questions/comments (and I apologize if I do!) but let me begin by saying, stopping was both a feeling of being elated and a feeling of dread for me.

I have to put it into perspective. What was I doing 5+ years before I was diagnosed? I was chewing back OTC pills for what I thought were migraines. If you ask me, I've probably been living with MS a decade or more, but that's just my humble opinion. I've had neurological incidents as far back as 10 years ago. Just none were crazy enough to get stubborn me to a doctor.

What finally got me to the doc was an accumulation of symptoms. I had so much inflammation (I figure) that it was like a slowly filling bathtub. Eventually if you don't drain it, it'll overflow. Mine almost did. Steroids fixed that.

Then 2 months later, back I relapsed in a period of great stress. Just after I'd started my needles, but as many of us know, Copaxone takes 6+ months to begin "working".

Anyways... my body tolerated Copaxone amazingly well. I had the occasional bruise or bump, to be expected. The shots stung. I never pre-medicated, iced, heated.. did my shots manually.

Then suddenly as I said, my body hated this drug. The bumps and stuff went from "it'll eventually get better" to "it'll eventually become hell". My breaking point was honestly when I could not walk on my leg for 5-6 hours after the thigh injection. I knew things were getting bad anyways when my hip shots, notoriously my 'vacation' shots, were even causing worse reactions than normal.

Cherie, I will not do an Interferon. I'll go back to Copaxone before I do the Interferons. I'm not down with the flu like symptoms. I can think of nothing worse. My colleague is on betaseron and says, "I inject myself with the flu nightly". She's been on it 5 + years. No thank you.

So I'm going to wing it, and perhaps consider LDN in the meantime (will I be accepted into the family!?!!).

My MS day to day is like one nightmarish headache that doesn't subside very often. Before I quit smoking, I felt almost 100% perfect, save for the mouth burning. Go figure huh?

Anything important I missed, toss it out. I do appreciate all the support again
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Dejibo (02-17-2009), Desinie (02-17-2009), DM (02-17-2009), Lady (02-17-2009), MSCherokee (02-17-2009), SallyC (02-16-2009)