Sounds like Mayo is close to you and because of complications you might need a facility that can track multiple issues.

Given that I would actually say look into Johns Hopkins. They have top TOS odc there and can handle the other issues like Mayo. But I understand if it is not doable because of the distance.

Othersise you might try Los Angeles and UCLA. Dr Gelabert. UCLA is recognized for TOS and has top neuro and rheumy depts. A top teaching school is a good bet