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Member
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Join Date: Feb 2009
Location: Ohio
Posts: 117
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Member
Join Date: Feb 2009
Location: Ohio
Posts: 117
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Hi Laura! I hope you are doing well. I'm off the Avonex until I can afford my deductible. I do plan on going back on it, and in the meantime, I'm doing what I can. I wish I had your discipline when it comes to exercise, but I don't!! Yoga I can handle though.
Right after I stopped it I had a burst of energy and I felt great. Now I'm feeling pretty lousy though. I have had some guilt that I wasn't doing anything for my MS, but not so much. Like you said, I've had MS a lot longer than I've been on a DMD, and it's all a shot in the dark anyway.
I totally agree about diet too. Once you're used to it, eating like crap makes you feel terrible. Ever since husband had a heart attack, before my MS dx, we've been pretty much following the American Heart Association diet. Every time I crave a Big Mac and eat it, I feel lousy. Also, to Husband and I, EVERYTHING tastes too salty now. It's a good thing to get used to, and I'm glad our bodies adjust like that--it makes it so much easier.
I want to hear about how you do without Copaxone. I'm very interested. If you could, pass me some of your exercise advice! I cannot lose weight, I'm underweight already, but I'd like to get stronger. Toss some of that discipline my way!
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