Quote:
Originally Posted by angelrsd
mom
i am so sorry that your rsd is spreading. like you mine spread very fast it took 5 mths to be in both arms from shoulder down and both legs hips to toes. but at the time had no treatment . i really hope that the block works  to you and hang in there any time you want to talk i am here
med question cymbalta is an antidepressent they put me on but due to my kidney problems i had to go off becuase it was causing me to have infections. the lyrica i was on for over two years and them it started messing with my blood pressure i liked tho it had very little side effects besides the BP thing.
the amitripaline i have taken when i first got a RSD doc and i broke out in hives . so i am not any help on that side
on to the blocks. like you mine wont do blocks for both sides at the same time either . i do lumbar blocks for the leg pain also this might helps also it depends on how they do the block and what meds your doc uses as every PM uses differnt techniques.
i hope that they can stop the spread or slow it down thats for i am so sorry that it is spreading. but like ali said keep moving no matter how much it hurts that is how i keep my limbs from freezing it is very hard and painful but if i stop useing them then they start to claw up
-carrie |
Hi Carrie! Thanks for writing me back. WOW.....our RSD sounds SO similar. It astounds me how this disease can spread SO quickly. I, too, hope they can get control over it and just stop it from going any further. Less than a week ago, I noticed the color changes in my hands, a few days later, the prickling feeling, and now the BURNING on my palms. When I hold something lightly, it leaves marks that look like I have put my fingers or palms down on a hot skillet and have severe burns. How this can all happen while my hands feel COLD to the touch (although sometimes hot and sweaty) is a mystery.
I had maybe 5 lumbar sympathetic's 1 1/2 months ago that HAD to help. I was in NO WHERE the amount of pain I'm in now. The pain in my feet has slowly crept back since my last one.....I am so deeply sorry for every one of you who experiences this. This disease is just wretched. It is terrible waking up every day wondering how much worse it's going to get THAT day. I think I am developing allodynia behind my knees, too. Does anyone have it there??? It aches just to lay in bed and have it touch the sheets.
What breaks my heart is that I have finally gotten to the point where I cannot hide my pain from my kids anymore. I have tried before now to "grin and bear it" and I am beyond that now. They see their Mom barely able to walk. My 5 year old daughter was crying today saying, "I don't think you're ever going to get better, Mommy". She was afraid I would leave her if I got worse. I promised her that no matter how badly I ever hurt, that I would NEVER leave her or Daddy or brothers. It just grieves me so much that SHE has to deal with this. I am an adult.....she is just a little girl. SHE should not have to deal with MY pain. Uggggghhhhh......
So, thank you Carrie......I know you have little ones too and understand how I feel. I do and WILL keep moving for them....no matter HOW badly it hurts. I'm going to start my own PT here until I can afford to get professional PT's. It's just all......too much right now. Thanks again for writing me back!! You're such a sweetie and are SUCH a blessing to this forum!!!