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Old 02-18-2009, 12:24 AM
nemsmom nemsmom is offline
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Join Date: Feb 2009
Location: Oregon Coast
Posts: 503
15 yr Member
nemsmom nemsmom is offline
Member
 
Join Date: Feb 2009
Location: Oregon Coast
Posts: 503
15 yr Member
Default Wow!

Hi Erin,

How Awesome!

I'm so glad your neuro has a plan for you! That has to be a relief to feel like you have an idea of what to expect.

I hope you're feeling good tonight.

Kristie


Quote:
Originally Posted by erinhermes View Post
Saw my neuro today! He kept me @ 60 mgs for a while - doesn't want to risk another "crash" but wants me to have IV IG every month for several months! Finally! A real plan! I was tired of crashing and having to stay in the hospital!

Next month I go down to 50 and then after another round of IV IG - 45 and so on.........

The funny thing is that @ the beginning, I was so scared of needles that I would cry and cry every time they placed the line, and now I "volunteer" to pull the line - just to irritate the nurses......

I go in 2 weeks from today to start another round.

I feel like we are finally getting somewhere!

Erin
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